Through these meetings, a truly global haemophilia network emerge

Through these meetings, a truly global haemophilia network emerged that has continued to grow in size and influence. Schnabel explained that, “because of its scope, the Federation is able to provide certain services and facilities which enhance the activities of the national organizations. One of the most important aspects of the WFH is that it provides a mechanism for the exchange

of information on a global scale”, [2]. Over the years, the WFH World Congress has evolved to become the world’s largest scientific meeting dedicated to bleeding disorders. In 2012, the WFH held its 30th congress in Paris, France, attracting AZD4547 mw over 5400 participants from over 115 countries. The WFH reached a turning point in 1969 when, thanks to the work of Chaigneau and others, the WHO established official relations with the WFH. Epacadostat in vivo This recognition was instrumental in advancing its international reputation and attracting other national patient organizations. In 1970, the WFH launched its first global development programme, the International Hemophilia Treatment Centre (IHTC) Program, conceived by medical secretary Anthony Britten,

MD, a doctor with severe haemophilia [3]. In 1972, Pier Mannucci, MD, took over as IHTC chair and the programme vision refocused on training. The programme was renamed the International Hemophilia Training Centre Program. Through the 1970s, the IHTC Program provided intensive specialized training to members of the multidisciplinary team from the developing world through fellowships and workshops.

In an IHTC history by Kevin Rickard, MD, (IHTC chair, 1986–96), he attributed much of the programme’s early success to the ‘enterprising, imaginative, productive, and forceful leadership’ of Mannucci, who served as IHTC chair for 14 years (1972–86) [4]. IHTC was often referred to by Rickard as the ‘Jewel in the Crown’ of the WFH [2]. One of the key IHTC learnings 上海皓元 has been that training is most effective when carried out in an environment similar to that of the trainees. In Thailand, the WFH worked with Prof. Parttraporn Isarangkura to promote progress in national haemophilia care. Under her direction, the Bangkok centre became a major venue for training on how to provide maximum treatment benefits with limited resources, and her centre eventually became an IHTC. Since the beginning of the programme, 550 individuals from 80 countries covering all medical disciplines have been awarded fellowships to train at one of the recognized training centres [5]. In 2011, a long-term evaluation of the impact of the IHTC programme was conducted of 135 fellows during 2006–10.

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